In
summer 2002, the Institute of Medicine released their report
on pediatric palliative care titled When Children Die: Improving
Palliative and End of Life Care for Children and Their Families.
This report called for improved professional education to
address the care of children at the end of life (EOL) and
their families. There are approximately 400,000 children
living every day in the United States with a chronic, life-threatening
condition. Although there have been major medical advances
in the treatment of these conditions, approximately 53,000
children die annually.
The
End-of-Life Nursing Education Consortium (ELNEC), a Robert
Wood Johnson Foundation funded project, is a national educational
curriculum to prepare nurses in EOL care. A version for
pediatric palliative care nursing education was adapted
from the ELNEC curriculum to provide current education and
extensive knowledge for nurses related to palliative care
for children. The End-of-Life Nursing Education Consortium
(ELNEC) held the first Pediatric Palliative Care Training
on August 14-16, 2003 in Pasadena, CA. Click
here to read the press release.
To
review the list of ELNEC-PPC trainers organized by state,
see the Pediatric
Trainer Director.
2009 ELNEC-Pediatric Palliative Care Courses
