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Jean M. Carroll
The Children's Hospital
Philadelphia, PA
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Developed Partners in Pediatric
Palliative Care program to link hospital end-of-life care
program with the community hospice home care agencies.
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Collaborates to offer three
programs quarterly to community agencies on topics related
to pediatric end-of-life.
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Provides unit-based education
to oncology and pulmonary areas on a monthly basis.
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Jill
Clark
Central Texas Palliative Care Association
Austin, TX
- Speaks about pediatric palliative care at
monthly nursing orientation.
- Works with Children's Hospital of Austin
and Esperanza, a long-term care facility for children, to
develop a partnership in the event of hospitalization.
- As a case manager, makes weekly visits to
see patients and families.
- Created hospital transfer forms for
Esperanza. Also developed a letter for parents about hospice
and palliative care services.
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Janet
Dell
Hospice of the Good Shepherd
Chambersburg, PA
- Assisted in providing the first children's
bereavement camp. Twenty children, who had lost a parent
or grandparent attended. Because of the publicity from the
camp, Janet has been invited to speak at the local school
and is participating actively in a local grief and loss
council to further education about children and grief.
- Used the ELNEC -PPC curriculum to train
camp counselors about child development
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Gay
Gale
Alta Bates Medical Center & Children's Hospital
Oakland, CA
- Co-authored an article entitled "Implementing
a Palliative Care Program in the NICU," which will
be published in Advances in Neonatal Care. This publication
requested that the authors develop a prototype of a brochure
entitled "Palliative Care in the NICU."
- Revised the NICU Palliative Care Policy's
Protocol.
- Grief support meetings have extended to
labor/delivery and the antepartum units following difficult
losses.
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Kathy
Lynn Ho
University of California at San Francisco's Children's Hospital
San Francisco, CA
- Promotes monthly palliative care rounds
with interdisciplinary team.
- Developing pain management, anxiety,
dyspnea, and terminal agitation algorithms.
- Consulting with pediatric pharmacist
and palliative care committee to finalize standardized pediatric
palliative care orders and developing medication reference
list to be included with the orders.
- Completed a palliative care educational
binder, which is available on nursing unit.
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Margy
Mayfield
Pediatric Palliative Care & Hospice Coalition of California
and Coastal Kids Home Care
Watsonville, CA
- Assisted in planning Coastal Kids Home Care,
a non-profit, licensed home health agency for children.
Margy works as a laison to 7 area hospitals in educating
them about the services that Coastal Kids offers.
- Developing a perinatal palliative care program.
- Educates members of the county office
of education, public health, county preschools and other
county and federal children's program on palliative care.
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Ayda
G. Nambayan
St. Jude Children's Research Hospital
Memphis, TN
- Developed a web-based version of ELNEC-PPC
(www.care4kids.org)
- Previewed the web-based ELNEC-PPC as a model
of excellence in palliative care education during the Association
of Pediatric Oncology Nurses (APON).
- Over-seeing the online version of ELNEC-PPC
as it is being translated into Portuguese and Spanish for
use in Brazil and Latin America.
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Margie Randolph
Sutter Memorial HospitalChildren's Center at Sutter Medical
Center
Sacramento, CA
- Teaches local APON members about end-of-life,
using ELNEC-PPC curriculum.
- Trains new nurses about pediatric end-of-life
care.
- Held a staff bereavement and coping
class for all pediatric staff.
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