2005 ELNEC-PEDIATRIC PALLIATIVE CARE AWARD Lori Butterworth and Devon Dabbs Children’s Hospice and Palliative Care Coalition Watsonville, CA Advocates, spokespersons and Co-Executive Directors of Children’s Hospice and Palliative Care Coalition. Works with coalition to ensure that seriously ill children and their families get the compassionate medical, emotional, and spiritual support they need to hold on to hope - whatever form hope takes- whether it be hope for a cure, a family vacation, time with family and friends, finishing the school year, graduation, or relief of pain and a peaceful death. Collaborated with the various governing boards of the state of California to ensure that critically ill children and their families receive excellent palliative care.  On September 19, 2006, Governor Arnold Schwarzenegger signed The Nick Snow Children’s Hospice and Palliative Care Act. Trained all staff in ELNEC-PPC who function in pediatric palliative care program that serves 75% monolingual Spanish speaking families. Used ELNEC training principles in the development of the partnership for parents (www.partnershipforparents.org). Received grant from the California HealthCare Foundation to fund coalition advocacy efforts.     Maureen Goode Giacomazza University of Michigan C.S. Mott Children’s Hospital Ann Arbor, MI Clinical Nurse Specialist on Pediatric Palliative Care Team.  The program was officially started on October 31, 2005. Assisted in hosting a fourth annual Palliative Care Conference in collaboration with two local partners (St. Joseph Mercy Health System and Arbor Hospice). Revising the palliative care content for central nursing orientation to incorporate more of the ELNEC-PPC curriculum (600-700 new nurses/year). Worked with colleague, Dr. Linda Strodtman, to develop and edit the film Evan Mayday’s “Good Death.”  This film has been shown around the country and follows the last days of a man and his family, struggling to provide a good death.  They have compiled a companion of supplemental educational materials onto a CD that is packaged with the film/DVD.  The film was shown to a wide variety of audiences at over 40 venues within the University of MI system, the State of MI, etc.  The University of MI issued a press release about this work and this resulted in an article in the local papers.  To review this article, go to:  http://www.umich.edu/news/?Releases/2005/Sep05/r092005a                                                  To read more about this work, review the article published by Nursing Spectrum at:  http://www.nursingspectrum.com/MagazineArticles/article.cfm?AID=20306 Continues with nursing research work on “Family Satisfaction with End-of-Life Care From a Cross-Cultural Perspective.”  Maureen is enrolling families to participate in this research from three intensive care units at the University of MI Hospital.     Elissa Harnen and Janet Thayer Thomas Kaiser Medical Center Los Angeles, CA Collaborated with the Kaiser Permanente National Diversity Department, Institute for Culturally Competent Care for Los Angeles Medical Center in providing culturally competent end-of-life education to physicians and nurses. Provided books on cultural competency to pediatric unit. Works with child life specialists to up-grad bereavement packets and develop formal policies and procedures for bereavement process (i.e. memory boxes, handprints, locks of hair, etc.). Karen Kalbfeld and Patty Lawson Yale – New Haven Hospital New Haven, CT Developed a needs assessment tool regarding pediatric palliative care for staff nurses.  This tool assisted Karen and Patty on how to plan future in-services regarding pediatric palliative care. Chief authors in developing an interdisciplinary care plan on care of the dying child.  The plan, “Care of the Patient and Family Experiencing the Death of a Newborn, Infant, and Child,” is available on the hospital intranet for all staff to access and utilize.  Developed a Pediatric Palliative Care resource manual and distributed to all 11 pediatric units, as well as other pediatric departments such as Child Life, Social Work, and Religious Ministries. Kathie Kobler Advocate Lutheran General Hospital Park Ridge, IL Teaches end-of-life courses at advocate level for perinatal, neonatal and pediatric RN orientation. Successfully utilizes perinatal palliative care plan in Labor & Delivery and NICU. Chaired the National Perinatal Bereavement conference, October 2006 in Chicago.  Actively championed to include palliative care in the conference curriculum and had several concurrent sessions addressing palliative care.. Nancy Rubino Wesley College Dover, DE In September 2005 and March 2006, offered a palliative care nursing course, using ELNEC-PPC. Using ELNEC-PPC, additional information provided in 2 courses, Introduction to Professional Nursing and Maternal/Child Nursing. Actively contributes to the professional publication on palliative care that is distributed to all Delaware nurses.  Authored an article on strategies to integrate pediatric palliative care into existing nursing curriculum for the Delaware Nurses Association (DNA) Reporter, August 2006.     Barbara Zenker St. Vincent Hospital Green Bay, WI Has provided numerous ELNEC modules to 94 health care professionals including physicians, EMT, paramedics, social workers, physical therapists, child life specialists, genetic counselors, and nurses. Quality In Life Team (QUILT) pediatric palliative care team is reviewing one ELNEC-PPC module per month Collaborated in creating an online database listing all of the pediatric palliative care resources available at St. Vincent Hospital.  Worked to develop a heart-shaped pin to recognize ELNEC-PPC trainers.  “These pins are highly valued—each nurse wants to earn one.” QUILT has established a sub-committee called the Bereavement Committee.  This committee has representation from several hospital departments.  Key projects of this committee include:  Creation of a Comfort Cart for families in times of crisis On-going review of pediatric deaths within the hospital to evaluate “lessons learned” Drafting a checklist for cares and processes centered around a patient in the last phase of life Planning a memorial service for families of pediatric patients who have died at St. Vincent Hospital     Top | End-of-Life Care | AACN Home Copyright © 2007 by the American Association of Colleges of Nursing. 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