Student Writings

Students answered the following questions, after viewing the film "Wit." The movie follows a middle aged intellectual professor, from diagnosis of her ovarian cancer to her death. The health care professionals who treat her remain aloof throughout, able to discuss only her treatment and blood counts, and completely unable to show compassion or understanding of her dying process.

 

  1. Identify the 4 central figures in this film and describe these characters and how you view their personalities and roles.

    Patient:
    She analyzed and viewed each experience from her perspective as an intelligent scholar, never letting emotion get in the way…She never wanted to admit she needed help until she hit rock bottom. The patient does not ask for anything above or beyond the norm, physically or emotionally. This presents her with a challenging dilemma once she becomes aware that she is dying and vulnerable.

    Fellow:
    The fellow in this film may be viewed as an awkward, immature, self-serving pompous jerk, or as someone who is afraid of sensitive subjects and unsure of how to handle them….His role highlighted the dichotomy between the research role and the patient care role. He was preoccupied with his future plans to become a great researcher and he perceived his residency as a hindrance to getting there. He treated the patient like a science project; a rat in an experiment. His character was offensive and annoying.

    Attending physician:
    He had one goal in mind, to have her complete the intended protocol of treatment, regardless of her outcome or experience along the way. He was out of touch with humanity. He was more concerned with testing new chemotherapeutic drugs than with the well-being of his patient. The patient wanted to hold on to hope that each new drug would cure her, and the physician's false sense of reassurance robbed her of her right to informed consent

    Nurse:
    The nurse/pt relationship grew over time. The nurse became advocate, confidant, comforter, caretaker, and listener. The patient began to trust her and open up about her fears and anxieties, which was a tremendous risk for the patient…

    The primary nurse was the only true caregiver of all the health practitioners. She expressed kindness and empathy. She advocated for the patient and always had her best interests at heart. I thought the nurse's character was tactful and sincere.

  2. How are death and dying viewed by the director in this film? Discuss.

    When a patient is actively dying in a hospital, it goes against the hospital's main objective, which is to heal and make well, therefore the medical staff struggled…This patient did not have any friends or family…The medical team completely neglected the patient's emotional and psychological needs….The nurse was the only person who spoke to the patient about the emotional and psychological aspects of death and dying.

    This movie acknowledges the cruel realization of the indignity of dying in a society which is ruled by science and technology, rather than by the heart and soul…The director elicits both sorrowful and humorous responses in the viewer. He brings the viewer face-to-face with the tender emotional expressions of this unfortunate woman as she dies a slow and painful death.

  3. Is this Registered Nurse a good role model or not? Explain and comment.

    The nurse persevered and was able to build a trusting relationship with the patient who then was able to share her fears and anxieties. The role of the nurse was multifaceted; however the role of advocate took precedence. The medical team did not always have the best interests of the patient in mind, therefore it was refreshing to see the nurse advocate for the patient whether it was regarding pain management, DNR status, or protecting her dignity….This film provided a picture of what the role of the nurse might look like in a situation where a patient is actively dying…

    Although she disagreed with the orders of the resident and physician, she remained professional and never bashed the doctor or resident doctor in front of the patient. In fact, she pointed out their good qualities as excellent researchers as she segued into the issue regarding the treatment not working, in spite of their best efforts.

    As the patient lay in a near coma, the nurse tenderly massaged lotion into her hands, demonstrating real kindness and respect. Ultimately, the R.N. acted heroically in her advocacy to honor the patient's wish to be DNR status…

  4. What will you take away from this film and will it affect your future clinical practice?

    I believe that the advocacy the nurse exhibited is the thing that I'll most take away. I feel comfortable with the emotional side of death and dying….however at this time I am less comfortable with the role of nurse as advocate… as a new nurse it will be difficult to stand up for my patients when I may mistakenly believe that others on the team know more and therefore know what's best for my patient…. This movie provided a more concrete example of what the role of advocate might look like.

    It is the human side of nursing; involving compassion, empathy, and knowing how and when to say the right thing that will be my ultimate challenge, and it is this aspect of my job that I really want to excel in and work at the most. This film drove home just how important these nursing attributes are.

    I have experienced the death of loved ones. What I have learned from those experiences as well as this film, is that the quality of one's life cannot and should not be measured by one's success in work or professional career alone. Life is precious and every individual is worthy of respect and kindness.


THOUGHTFUL STUDENT RESPONSES

  1. Do you fear death?

    I feel that death can occur at any given moment in my life and for that reason I always feel the intensity of its possibility; however it is not a fear. Having recently experienced the death of my brother in a motor vehicle accident, the reality of death and unexpected nature of it hit close to home for me and for that reason I appreciate every day that I have to spend with my family and friends.

    Yes. I'm young and look forward to a long and fulfilling life. Perhaps later in life after I accomplish the many goals I have set forth, I would feel differently.

    The truthful answer is I don't know…I am prepared for the unexpected, through my will and powers of attorney and such…I fear the death of my loved ones, the void I would feel without them, far greater then I fear my own death. Ultimately, I fear suffering in the face of my impending death, more than death itself.

  2. How comfortable have you been dealing with pain and suffering (and even death) during your clinical experiences in this program?

    I had a patient who was dying of pancreatic cancer and was extremely close to death. He spoke and understood limited English, therefore communicating was challenging and he did not have family or friends at the bedside. I felt a strong desire to spend as much time as possible with him, because he was alone and no one in my opinion should die alone. He was receptive to my company and my compassion although our verbal communication was limited. His body language reinforced this fact. When I left that day I went home and cried for him and the family that he may or may not have had…

    To be honest, I'm not very comfortable. It is difficult to watch someone in severe pain, as I have on more than one occasion during my clinical experiences. I try to keep in mind that everyone expresses pain differently, and it is the expression of pain that causes me discomfort, not the pain itself.

    I will never truly be "comfortable," nor do I desire to be, lest I lose sight of the importance of caring and advocating for the patient to "live" without pain and suffering even in the face of death.

  3. Critique the treatment and medical and nursing care you have observed for the dying during your time in this program.

    I worked with a patient who had a PEG tube in place which caused him severe diarrhea. He would become aware of the diarrhea after it had begun and he was mortified when I had to change his diaper. I felt so badly. I comforted him by telling him not to be embarrassed, and that it was okay. He eventually calmed down and I finished cleaning him. My heart went out to him. I could only imagine how difficult it must be, to be unable to maintain the dignity of going to the bathroom in private…A little while later it was time for me to leave and I said goodbye and thanked him for the time we spent together. He smiled at me and thanked me for spending the day with him. I felt we had made a connection that day and I was proud of my work with him. The following week I learned that he had died that night after our time together. I was saddened by this news, but I also felt privileged that I had the opportunity to provide him with quality care just before his death.

    I witnessed some behaviors by physicians that were both unprofessional and disrespectful. If I were a registered nurse working with such a physician, I would have serious ethical and professional issues to consider.


STUDENT MODULE EXAMPLE: INTELLECT

INSPIRE PROJECT: Psychosocial and Cognitive Developmental Processes in Aging: Normative and Disordered (I)

Context: Psychosocial theories of aging suggest that a sense of integrity regarding one's life is necessary in order to dispel despair and fear of impending death (Erikson, 1963). The irony of aging is that physical and cognitive deficits create challenges to the ability to self express spontaneously, to relate to others, and to experience a sense of freedom. Losses of functioning in physical, social, cognitive, vocational and financial spheres can result in depression and a sense of despair that interferes with the ability to view one's life as an integrated whole. Additionally, a move to a retirement community, nursing home or extended care facility results in a loss of independence for aged individuals. This presents challenges not only for the aged individual, but also for healthcare providers who are often lack the knowledge and experience to engage with them about the psychological and existential life issues that they face.

Currently 13% of the total US population is now age 65 or older and this percentage is expected to double over the next 40 years. Dementia is a dramatic and growing health problem given the exponential growth of elderly among the US population. Many of the dementias, like Alzheimer's disease (AD), are progressive, deteriorating neurological diseases that alter and destroys the brain nerve cells and neurotransmitter mechanisms. Dementia is devastating not only for the individual but also for families and health providers.

This module is intended to assist the nurse clinician in physical, cognitive and emotional management aspects that arise for both the primary patient and family. Working with family caregivers is key in the effective management of persons experiencing senile dementia. In addition to standard nursing interventions, the Creative Arts Therapies, which include music, art, dance/ movement and drama therapy are powerful tools for tapping into other forms of cognition which can help the elderly access memories and revive vital aspects of themselves that previously lay dormant, and experience a sense of internal mobility and freedom that would otherwise be denied them.

Primary Goal of Module: Students will explore both normative and disordered physical, cognitive and emotional developmental processes in the elderly and learn to assess and promote healthy functioning and intervene appropriately with patients and families when decline is evident.

Evaluation: Students will submit an annotated bibliography on the 2 journal articles and a reaction summary to the Web based multi media case on dementia. Optional diary of clinical experiences may be submitted for extra credit. All assignments are due on 2/9/04 except teaching plan due: 3/9/04

Module Assignments
Readings
Media
Class and Field Experiences

Miller (2003) Chapter 24, review Chapter 7
Newman, B.M, & Newman, P.R. (1999). Development through life: A psychosocial approach (7th ed.). Belmont, CA: Wadsworth Publishing Company, pp. 469-538. (Optional recommended)
National Institute on Aging. (2000) Progress Report on Alzheimer's Disease: Taking the Next Steps. Silver Spring, MD, Alzheimer's Disease Education and Referral Center
Smith, A.G. (2000). Exploring death anxiety with older adults through developmental transformations. The Arts in Psychotherapy, 27, (3), pp. 321-331.
Greenwood D, Loewenthal Del, Rose T. (2001) A relational approach to providing care for a person suffering from dementia. Journal of Advanced Nursing. 36 (4) 583-590.

 

A four-part case on the progression of a patient experiencing dementia and his family will be available to you in the Gerontology Course Clinical Communication Center. The Case is entitled "The Final Amnesia." Read all four parts of the case and visit the web links at the end of each part.

From the 4 part case, readings and in class discussion, in a bulleted list summarize the 10 most important concepts or applications that will influence your clinical practice with patients experiencing dementia and their families.

 

 

 

In Class Work:

1. Cognition and Aging - Concepts and Case Study

2. Art experiential.

3. Creative Arts in Therapy and the Elderly-Transcending the Physical

4. The Crabbit Old Woman - Reading and Discussion

5. Synthesis - Integrating concepts into clinical application.

Teaching Plan:
Dementia: Nursing interventions with individuals and families.

Revised 1/04

 

 

STUDENT WORK RELATED TO ABOVE MODULE: INSPIRE: INTELLECT

Teaching Plan: Inspire Module (I) Intellect
Geriatric Population and the Federal Election

Assessment

We tackled the INSPIRE project module, INTELLECT, by defining and addressing a patient need in a local skilled nursing facility. We observed that residents with high cognitive functioning ability tend to be neglected by staff, as activities are directed primarily toward those with lower cognitive abilities. These residents who are more intellectually capable generally refuse to attend such events, and tend to spend too much time alone in their rooms napping and watching television. We created an event for this group, that was both intellectually challenging and that encouraged independence. Our event involved presentations and discussions about the upcoming federal election, and dissemination of practical information about the voter registration process.

Our challenge: stimulate the cognitive ability of the higher functioning residents and encourage their independence.

Our method: discussions/presentations re: the two candidates, George W. Bush and John Kerry and their opinions on important issues; and practical advice re: how to register to vote, including how to fill out absentee ballot applications.

Planning and Implementation

Each of us chose one of the following issues: healthcare, prescription drug coverage, the economy, education, abortion and capital punishment. We researched and created presentations on these issues.

We put together a brightly decorated billboard with all of the above topics highlighted. We designed a poster that highlighted information about filling out and turning in absentee ballots. Both billboard and poster were centrally located during the months leading up to the election. We also set the mood by decorating with red, white and blue streamers and by playing patriotic music, to add visual and auditory appeal to our module.

At the completion of our presentations, we asked some questions on the information discussed and handed out prizes (sun visors) for those whose answers were correct or almost so. We then asked some fun trivia questions (ex. "Who's the oldest?") and gave out American flags for prizes.

Evaluation

With our red, white and blue streamers, patriotic knick-knacks, and themed music, we created the perfect atmosphere for informative presentations, for reminiscing and for having fun. The residents loved the music, which brought back memories and resulted in spontaneous wheelchair dancing! They told anecdotes and shared their memories of American presidents who served long before our time. We had an excellent turn out, with full participation from our attendees, who ranged in age from mid-60's to 100+ years of age. We achieved our goals by providing them with an opportunity for intellectual stimulation, and by giving them both practical advice and voter registration materials.


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STUDENT MODULE EXAMPLE: PHYSICAL

INSPIRE Project: Activity-Exercise Pattern (P)

Context: Maintaining maximal movement in health and in the presence of various disorders remains a significant means of personal contact, sensation, exploration, pleasure and control. Over the course of a lifetime, mobility as well as agility change. Aging produces changes in muscles and joints, particularly of the back and legs. In old age, one moves more slowly and purposefully, sometimes with more frequent thought and caution. In addition, falling is one of the most frequent and serious probabilities associated with the aging process. Maintaining mobility may mean the difference between an independent, active community life and maintenance of self-respect versus institutionalization and a sedentary life-style. Overall, promoting maximal mobility and improving functional independence have been identified as national objectives for our nation (Healthy People 2010). This module will explore major factors related to mobility in aging. Particular focus will be placed on the role of selected interventions, which specifically arrests or delays age changes related to impaired movement, including moderate exercise programs, isotonic and isometric exercise, confidence enhancing strategies, weight control, and home safety.

Primary Goal of Module: Students will explore the phenomena of mobility in the elderly and learn health prevention/promotion approaches to maintain a physically active life style.

Evaluation: Students will submit an annotated bibliography on the research article and a one-page reaction paper highlighting the media assignments. Optional field experience assignments may be submitted for extra credit. One teaching plan per student for the entire course. All assignments are due on 2/23/04 except teaching plan due: 3/9/04.

Module Assignments
Readings
Media
Field Experiences

Miller (2003) Chapter 18 Mobility and Safety

Research Focus:
Van Haastregt, J. et al (2000)
Preventing Falls and Mobility Problems in Community
Dwelling Elders: The Process of Creating A New Intervention. Geriatric Nursing, 21,309-314.\

 

 

 

Go to: http://www.nih.gov/nia
search "Exercise" and order a free copy of: Exercise: a guide from the National.Institute on Aging. This site will be
useful for both field
Assignments.

2. Go to:
http://www.nof.org/
Use selected information and resources to develop the teaching plan.

 

Optional:
1. Conduct an environmental safety assessment in your facility.
Assessment form will be given out in class.
2. Develop a teaching plan for a female (74 years) who has Type 1 Osteoporosis. Past history includes a Colles' fracture of the distal forearm one year ago. She is taking Fosamax 10 mg. daily.
Teaching Plan:
Assisting patients or staff with fall prevention techniques.

 

STUDENT WORK RELATED TO ABOVE MODULE: INSPIRE - PHYSICAL MOBILITY

Introduction:

Physical activity is vital to both mental and physical health in the aging adult (Health Canada [HC], 2003). Overwhelming evidence led the Department of Health and Human Services to develop, within Healthy People 2010, national objectives for increasing the number of adults who exercise regularly (Edelman & Mandle, 2002, pp. 718). To maintain independence and perform the activities of daily living adequately, the older adult must be able to walk, stretch, and maintain muscle strength and performance. Age related changes that affect mobility include: decreased bone density, hardening of tendons and ligaments, reduced muscle size and strength, reduced sense of balance, altered gait due to pain or injury, and reduced reaction time. Despite these inevitable changes, older adults can, with proper ability-dependent exercise programs, maintain and reduce restrictions on their physical mobility.

The nurse facilitates older adult exercise by first teaching its benefits, a vital step in motivating participation. (Edelman & Mandle, 2002, pp. 719). The nurse and patient then design a program that will maintain strength, flexibility, and balance.

Elderly individuals with physical limitations and chronic disease also benefit from increased activity. Exercise optimizes their physical capacity and assists in reducing the effects of chronic diseases and conditions (HC, 2003, 4). Approximately 60% of older adults are inactive (HC, 2003, 4). This inactivity leads to loss of bone and muscle strength, a drop in performance of the heart and lungs, as well as loss of flexibility (HC, 2003, 4). To combat these affects, regular activity programs must be implemented. Such programs begin with flexibility exercises, which are the least strenuous and can be performed on a daily basis.

Plan:
We student nurses implemented exercise and activity teaching sessions with residents in a local long term care facility, with a goal of combating their knowledge deficit related to proper range of motion exercises for optimal joint flexibility.

On the residence floor solarium, we arranged 3 participating patients, who were seated in either wheelchairs or regular chairs, in circular formation, which enhances learning through mirroring. We placed ourselves in the center of the circle, each one of us facing each resident, to provide focal points for demonstration. The session began with didactics about the benefits of increased activity. Then, we discussed maintaining and increasing flexibility through everyday activities, and included information about appropriate timing and duration of those activities. We emphasized the importance of consistency--practicing flexibility exercises at least once daily. We then asked each participant to name, based on our presentation, two benefits of increasing physical activity.

Next, we student instructors demonstrated several flexibility and range of motion exercises. Then we helped them perform every exercise, each one for a given number of repetitions as specified in the interventions section of this teaching plan. At the end of the exercise progression, each patient demonstrated two of the exercises just performed during instruction, with the student instructors providing feedback. At the end of the session, we entertained questions and provided positive feedback to the participants for their efforts in the program.

Regarding Participants' Physical Abilities:

Resident #1: Patient demonstrates limited range of motion when attempting to raise hands over head while dressing. Patient experiences difficulty turning head to look out window when seated in chair. Patient demonstrates limited ability to lift legs vertically when seated in chair. Patient is wheelchair dependent and nurse dependent for transfer due to instability when walking and stiffness related to DJD.

Resident #2: Patient demonstrates limited range of motion when bending at waist while attempting to put on shoes. Patient demonstrates difficulty with raising legs vertically when seated in chair. Patient utilizes furniture for support when ambulating short distances and is wheelchair dependent for long distances. Patient is able to transfer from bed to chair with some assistance from nurse.

Resident #3: Pt. demonstrates limited ability to get out of bed relative to inflexibility of knees, demonstrates difficulty ambulating from chair to bathroom with use of walker, and demonstrates difficulty putting on socks and shoes during AM care.

Goals:
Resident will be able to verbalize 2 benefits of exercise by end of teaching session.

Resident will participate in 5 sitting active range of motion exercise activities, as appropriate to ability, within 15 minute teaching session.

Resident will return demonstrate 2 of the 5 exercises taught by end of 15 minutes teaching session.

Interventions:

  • Assess for resident's ability to ambulate and perform ADLs effectively and safely on daily basis by observing resident performing actions such as ambulating, dressing, and bathing. Teach resident benefits to exercise including:
    • Maintenance of range of motion in limbs
    • Better sleep
    • Reduced constipation
    • Better digestion
    • Weight loss
    • Socializing opportunities
  • Inform residents of practical daily routine methods to maintain or increase flexibility
    • Use shoe tying as an opportunity to bend and stretch at the waist to touch toes (HC, 2003, 7).
    • Use dressing as a time to reach overhead and stretch arms overhead (HC, 2003, 7).
    • When seated, use this position to lift legs vertically and hold. Stretch, flex and extend feet while performing this exercise.
    • Reach wide laterally for items within reach to the periphery. Use the opportunity to stretch. Do not overextend while reaching, as this could cause injury (HC, 2003, 7).
    • Consider every opportunity while performing ADLs to stretch and reach. Minimal effort has benefits (HC, 2003, 7).

  • Important points for stretching and safety
    • Begin with stretch and hold exercises for five minutes to warm up (HC, 2003, 7).
    • Do not stretch rapidly or suddenly; move gradually (HC, 2003, 7).
    • Stay relaxed. Do not stretch so that it becomes painful (HC, 2003, 7).
    • Breathe regularly. Do not attempt to hold your breath (HC, 2003, 7).

  • Teach 5 sitting flexibility / range of motion exercises (Edelman & Mandle, 2002, pp. 720), including:
    • Side lateral raises (10 reps x 1 set)
    • Lateral arm circles (10 reps x 1 set)
    • Touch toes from sitting position (5 reps x 1 set)
    • Head rotation/lateral shoulder touch (10 reps x 1 set)
    • Leg extension (10 reps x 1 set)

Evaluation:

Goal 1 achieved. All 3 residents in teaching session verbalized 2 benefits of exercise by end of teaching session:

  • Resident #1 stated, "If I do these exercises, they may help in my range of motion and help me sleep better."
  • Resident #2 stated, "These exercises can help with my constipation and help me become more flexible."
  • Resident #3 stated, "These exercises will help me with my walking because it will help increase my range of motion in my legs and I may even lose some weight."

Goals 2 and 3 achieved. All three residents participated in the 5 sitting exercises, as observed by student nurses, as appropriate to ability by the end of the 15 minute teaching sessions. Each resident returned and demonstrated 2 exercises:

  • Resident #1 demonstrated lateral arm raises and head rotation.
  • Resident #2 demonstrated toe touch exercise and lateral arm circles.
  • Resident #3 demonstrated leg extension and toe touch exercise.


References:

Edelman, C., & Mandle, C. (2002). Health promotion throughout the lifespan (5th ed.). St. Louis, MO: Mosby, Inc.

Health Canada (2003, December 4). Canada's physical activity guide to healthy active living for older adults. Retrieved August 17, 2004, http://www.hc-sc.gc.ca/hppb/fitness/pdf/guide_handbook_older.pdf


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