ELNEC Web Resources

• American Academy of Hospice and Palliative Medicine
  AAHPM has created a Web site as part of their mission to raise awareness of the benefits of hospice and palliative medicine, and help patients and families find the care they need. Visit PalliativeDoctors.org.

• Archstone Foundation
  The Archstone Foundation is a private grantmaking organization, whose mission is to contribute towards the preparation of society in meeting the needs of an aging population.

• The Association for Death Education and Counseling (ADEC) is hosting its annual conference in Miami, FL, June 22-25, 2011.  The title of the conference is  Making Connections: Dying, Death and Bereavement in the Global Community. For more information, go to http://www.adec.org/conf/index.cfm.

• Association of Nurses in AIDs Care (ANAC) 
  Overview of ANAC

• Association of Rehabilitation Nurses

• California HealthCare Foundation

• Canadian Virtual Hospice
  The Canadian Virtual Hospice provides support and personalized information about palliative and end-of-life care, loss and bereavement to patients, family members, health care providers, researchers and educators.  www.virtualhospice.ca

  Créé à l’intention des patients, de membres de leur famille, des fournisseurs de soins de santé, des chercheurs et des universitaires, le Portail canadien en soins palliatifs se veut une source de soutien et d’information personnalisée dans le domaine des soins palliatifs et des soins de fin de vie.  www.portailpalliatif.ca 

• Caregiver Insights Foundation - Alzheimer's Dementia Information and Support
  Resources for those who are caring for loved ones with chronic illness.

• Children's Hospice and Palliative Care Coalition

• City of Hope Pain/Palliative Care Resource Center (COHPPRC)

• The Clinical Communication Collaborative (CCC) is dedicated to the advancement of palliative care by fostering clinical communication practices for healthcare professionals. The CCC provides free teaching materials for teaching nurses, physicians, and others to engage in patient-centered communication. 

• EPEC (Education in Palliative and End-of-life Care) Project
  Our mission is to promote educational excellence in palliative and end-of-life care for all health professionals. The EPEC Curriculum combines didactic sessions, videotape presentations, interactive discussions, and practical exercises to teach fundamental palliative care skills in communication, ethical decision-making, psychosocial considerations, and symptom management. 

• Esse Institute: Teaching Clinicians How to Better Communicate About Dying
  Take a free mini course: Mastering The Listening Self: Personal Growth Through End-of-Life Encounters. Click here for press release.

• George Washington Institute For Spirituality and Health (GWISH) 

• Healing Heart Pet Hospice:  This is a program, started by veterinary professionals, in which pets receive  end of life care in their own home, thereby eliminating trips to the hospital.

• Hospice and Palliative Nurses Association

• LION IN THE HOUSE Educational DVD Modules Are Available
  The real-life intimate case studies serve as conversation starters to assist health care professionals and students to sensitively explore issues of childhood and young adult cancer.  The seven modules include: Nurse-Patient-Family Relationships, Pediatric End-Of-Life Case Studies, Siblings Stories, Disparities, Spirituality and Childhood Cancer, Childhood Cancer and School Issues and Childhood Cancer Survivorship Stories.

  These educational DVD Modules are available through Aquarius Health Care Media,www.aquariusproductions.com/lion or 1.888.440.2963. The accompanying curriculum materials are available as free downloadable PDFs.

• Medscape
  End-of-Life Care: Improving Communication Skills to Enhance Palliative Care
  Learn the differences between hospice and palliative care, and how to communicate with patients and families to learn their end-of-life wishes. CE credits offered by Medscape Nurses without fee for this Web-based continuing education program. One-time free registration required to access Medscape.

• Mesothelioma Cancer Alliance

• Mesothelioma Center
  The Mesothelioma Center is an up-to-date resource for all mesothelioma (What is Mesothelioma?) issues ranging from mesothelioma statistics to diagnosis options.

• National Cancer Institute
  Eliminating the suffering and death of cancer.

• Oklahoma Palliative Care Resource Center 

• Oncology Nursing Society
  The Oncology Nursing Society (ONS) is a professional organization of more than 32,000 registered nurses and other healthcare providers dedicated to excellence in patient care, education, research, and administration in oncology nursing. The overall mission of ONS is to promote excellence in oncology nursing and quality cancer care.

• Palliative Care Network
  Palliative Care Network's purpose is to provide a platform to connect people interested in palliative care for the purpose of long-distance education, world-wide. See the first online community exclusively for palliative care professionals at http://www.pcn-e.com/alpha.

• Palliative Care Leadership Centers™(PCLC) Intensive, Customized Training and Yearlong Mentoring
  Palliative Care Leadership Centers™ (PCLC) are nine leading palliative care programs that provide intensive, customized training and yearlong mentoring for palliative care programs at every stage of development and growth. Learn more and enroll at www.capc.org/pclc.

• Robert Wood Johnson Foundation

• The IPAL-ICU Project 
  The IPAL-ICU Project provides essential tools and resources to support the improvement of palliative care for all ICU patients and their families. IPAL-ICU is committed to assisting providers across disciplines to deliver outstanding palliative care as an integral component of comprehensive critical care, from the time of ICU admission, regardless of prognosis. The IPAL-ICU Project is supported by the Center to Advance Palliative Care and the National Institutes of Health/National Institute on Aging.  

• International Society of Geriatric Oncology (SIGO)

• Senior Living Map aims to be the most complete resource for the search of Assisted Living and other senior housing options. There is a nation-wide database of assisted living facilities that has information not available anywhere else, gathered through hundreds of hours of research.

• University of Utah Hartford Center of Geriatric Nursing Excellence: PhD Program

Index/Order Form of Materials

The COHPPRC is a clearinghouse to disseminate information and resources to assist others in improving the quality of pain management and palliative care. Established in 1995, the COHPPRC collects and centralizes a variety of materials including pain assessment tools, patient education materials, quality assurance materials, palliative care resources, research instruments and other resources. See section XI for end-of-life and palliative care resources.

If you have materials that may be useful to others related to pain management or palliative care, we invite you to contribute them. Please contact Stacey Pejsa or Betty Ferrell, PhD, RN, FAAN at the City of Hope for a materials submission form so that you will be properly credited for your contribution. Attached is the Index of Materials that is available for ordering through the COHPPRC.

There is a nominal fee for ordering written materials from the Index to help defer the cost of printing and mailing. Please note that the W indicates items that are available at no cost on the Website: http://prc.coh.org.